Tuesday, 2 March 2010

transplant clinic

I had transplant clinic today. Recently I've been feeling a bit rotten to say the least, no energy, no appetite, a blank mind, low oxygen levels and a fast heart rate. This morning I felt like it was a struggle to even move any distance. From getting up to take my medication I had to lie on my bed before I could even think about getting dressed. I felt so bad this morning that I honestly wondered how much longer I could go on for. With help I managed to do what I needed to and go to transplant clinic. Once seated I rested my arm on a TV stand and closed my eyes from exhaustion of getting from the car to the waiting room. One of the transplant co-ordinators came to take us round to see my consultant and a look of concern instantly came over her face. The appointment was quite brief with a quick summary of what’s been happening, how much I now need my NIV and how much pressure its taking to inflate my lungs and how unwell in general I've become recently.
To sum things up, my time is running out. Without a donor, I'm going to die, soon.
As difficult as it was to hear that I was in that much of a haze from how unwell I'm feeling it didn't have that much of an impact because I thought 'yeh, how I'm feeling right at this moment I can believe that'. I left with the image of my consultant crossing his fingers; he was crossing his fingers for my life because that’s all he can do now. In the waiting room on the way out I broke down into tears.
Please, if you believe in organ donation sign up to the register it takes literally 2 minutes and you can do it online, my life and the lives of thousands of others depend on it.


Tori said...

Sending you massve hugs my love and I also have my fingers crossed for you xx

Molly said...

Hugs. Keep fighting Rachy. I really hope your call comes soon. I've got everything crossed for you.

Moll x x

Stephanie Keustermans said...

Don't give up, your new lungs are on their way. I'm keeping my fingers crossed for you too!
I received my call when everybody has given up hope, so keep hoping!

Thinking of you,
Stephanie (from Belgium)
Double lung transplant in 2001 & re-transplant in 2003

Something Happened Somewhere Turning said...

I have been reading your blog for a little while now, and I am so sorry that things are so tough right now. I am crossing my fingers and I pray that you get your call soon.

Rachy said...

Thank for your wishes, I haven't given up at all, I couldn't do, I know as long as I'm still alive and still on the transplant list there's still hope and that along with very supportive friends and family is what keeps me going :-)

Jac said...

keep fighting Rachael - I am hoping and praying the call comes soon. big hugs xx

loulou said...

This is a beautiful updated site hun and I can only empathise with you. When you hit this point it is difficult to see the sparkly future that everyone promises will come. But please believe it will hun as its the only way to carry your body through this. Take things slow and put yourself first now. You will get that call hun you turn your thoughts to you and take as much help as you need right now xxxx

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