Friday, 8 May 2009

Update from Rachy's mum

Hello, don't worry Rachael is ok. She told me to come on here and update, she hasn't abandoned her blog completely but is taking a break at the moment. Her health is continuing on a slow decline which unfortunately we can't do anything about. Not much has happened recently with transplant, we still don't know which way things are going to go. We're still waiting to get the ok to get her listed be it in the UK or America. This waiting has affected all of us a great deal. If we had a definite answer we could deal with it either way but the not knowing is the worst thing. Rachael hasn't really been herself recently and I can see this has got to her alot. She's taking time out at the moment to find some head space, enjoy what she has and make the most of the things she can still do. Rachael hasn't had much support recently either, unfortunately you can only spend a limited amount of time at day hospice and her time there was up some time ago. Her local doctor sees her on an as needed basis, as her decline is a steady one there isn't really a point in seeing her unless the situation becomes acute i.e with infection and other wise her other support systems seem to have disappeared which hasn't helped.
We want to thank everyone that has donated and the people that continue to donate to Rachael's transplant fund. I hope to be able to update you soon with some positive news.
Lynne x

5 comments:

Jess said...

Thank you for the update. I had been worried. Rachael, you don't know me but I've been following your blog and keeping you in my thoughts. I know you don't know much about what is going on transplant-wise, but I live near Duke and if there is anything I can do to help you here please don't hesitate to ask.

--Jess

tandoori_magpie@yahoo.com

Marty Zelei said...

Thank you for the update. You are always in our thoughts and prayers. We don't live near Duke, but live very close to the transplant center in Phoenix Arizona. Is Duke the only transplant center you are considering? If you get on the transplant list in America, Please let us know if we can do anything for you and your family.

Marty and Monica Zelei
www.martysnewlungs.blogspot.com

Lynne said...

Hi Lynne
Thank you for the update about Rachel we are always checking the blog for news and worried when we dont hear how she is doing. Please pass on our love and tell her we are thinking of her and sending hugs. I am so sorry that your support network seems to have disappeared just when you need it but I also know that many people will be thinking about Rachel and sending their love as always, us included, and I hope you can find some strength in that.
Lynne and Kiri x x x
Breathtakers

loulou said...

I have been worried about Rachael but I suspected she jusst neededto zone out for a bit bless her. Please pass on my best wishes and that I would love to come and visit her soon as I feel a lot stronger, if thats ok? I talk about her lots to friends and hope more people can help raise funds for America!!!!

Lu xxx

Marty Zelei said...

just thinking about you and praying for you. Hope all is going well and that you are doing ok.
Monica

 
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