It takes less than 2 minutes to sign up to become an organ donor online, you could save upto 7 lives like mine...
To sign up now click here
Check us out on the ambassadors blog!
Breathe On UK
I am proud to be an ambassador for the charity Breathe On UK
The rare lung disease ribbon!
As designed by us!
New Start supports The Wythenshawe hospital transplant program
Support Holly's Campaign!
The Willow Foundation is an adult wish foundation that granted me a wish and made my 21st very special
Wales air ambulamce provides a vital emergency service to distant areas of Wales. I have been lucky enough to have my life saved by them on one occasion whilst I was staying with family in North Wales.
Well I think my picture speaks for itself but believe me when I say it has not been an easy week. Long story short I will be going to London for a lung transplant assessment, so theres a possibility I could get on the UK list but that leaves me wondering is it actually worth the risk? Do I have the time to wait in the UK? Can I afford to risk waiting upto 4yrs? Lots of things to think about there plus the journey is 210miles each way which isn't going to suit me so well but I know I have to keep my options open and so I probably will be going. I have a cardiac work up (whatever that means) at my local hospital planned for next week then I will be in London within the month if I decide to go. I was at the hospice today, wasn't a good or easy day, I have fluid on one of my lungs possibly cardiac related, I saw the physios and picked up some tips which I'm hoping will be helpful. Haven't seen Jamie due to the infections I've had recently he's had to stay away, I had a flu jab on Monday too which upset things even more I have been sniffly, clammy and headachy all week. So anyway I will do a longer blog soon and explain why I have ended up going back to London.
I'm praying that things go well in London and aren't too tiring for you. I wish there were an easier way. Hang in there girl. You amaze me with your strength.
Rachel I have been through this . I was a non resident who went to the US for a TX . DOuble lung 14 years ago . I know how it works , the program , the results , best hospitals , most affordable etc etc . Go for it . If you have any questions e mail me . I do not read blogs or talk to people this is the first time I ever have . so hit me up I can be of help . Neil : neillaz@gmail.com
7 comments:
Thinking of you so much. Stay strong and positive like you always are.
Take care, love always
Emma x
Thinking of you and praying for you!
I'm praying that things go well in London and aren't too tiring for you. I wish there were an easier way. Hang in there girl. You amaze me with your strength.
Hey Rach,
Thinking of you so much, your so strong I dont know how you do it
All my hope and love
Sarah xx
xxxxxxxxx
Rachel I have been through this . I was a non resident who went to the US for a TX . DOuble lung 14 years ago . I know how it works , the program , the results , best hospitals , most affordable etc etc . Go for it . If you have any questions e mail me . I do not read blogs or talk to people this is the first time I ever have .
so hit me up I can be of help .
Neil : neillaz@gmail.com
Thinking of you everyday Rachy, be strong.
with love and hugs as always
Lynne and Kiri xxx
Post a Comment